Monthly Archives: November 2007

Day Four of Transplant Week

I cried when I put Sondra in the cab to go to the airport. I would have liked to have said something profound but it would have been hard talking around the huge lump in my throat. She made it home fine though I haven’t got the details yet. I will call in the morning after she has had some rest.

Dale is not going to get to leave the hospital tomorrow. They are planning on Sunday or Monday. He is holding a bit of fluid due to the kidney being shocked from too much Prograf in his system. Prograf is one of the anti-rejection drugs that he has to have but it also is toxic to the kidney so they have to watch the level. He had too high a level and so they backed off for a day and hopefully things will level off tomorrow.

He is having to take insulin and check his sugar right now. Hopefully as the dosage of Prednisone gets lower the problems with sugar and high blood pressure will be better. The other possible side effects from Prednisone are difficulty sleeping, hot flashes, night sweats, mood swings, full face and cheeks, acne, increased appetite and weight gain, blurred vision, and water retention. Sheesh. He is definitely retaining fluid and it is making it difficult to breathe.
I had a minor melt down today. I had taken the shuttle to the hospital and went back to get the car so I could put gas in it while it was daylight. I did a little straightening up and I happened to glance down at my hand. I have been wearing Dale’s wedding ring since they took him to surgery and it was missing. It’s a little big for me and I was afraid I had lost it on the shuttle. I was crying my eyes out and taking my bag apart looking for it. I finally found it in the very bottom but for about fifteen minutes I was terrified. It’s crazy how huge things can be happening in your life and something little will make you come completely undone.

We have walked four or five times today so in that respect he is making progess. The doctors don’t seem terribly concerned yet and so far they tell me everything is fairly common. We really wanted to be the “poster kids” for transplant but we’ll do okay – we just have to be a little patient which we are not very good at.

Another piece of news is that we will be “in clinic” for three to four weeks as far as they know now. That means we might be here through Christmas and that is not something Dale wanted to hear. We may just have to have Christmas at the apartment. He will have to avoid crowds and stay in well ventilated places for several months anyway so it may just have to be a quiet kind of holiday. It’s not written in stone but it is a very good possibility. I know my kids will be disappointed as will we.

Things Are Going Well

Sondra got to leave today. She is at the apartment and I will be putting her on a plane tomorrow. She and I went and ate supper with the other residents of Twice Blessed House this evening. The Junior Service League did the cooking and we got to meet a few other folks there.

Dale made two trips around the nurses station today so he is slowly getting stronger. He ate a bit more too.

I spend a large amount of time either hunting a parking space or trying to find the shortest route to or from wherever I have ended up parking the car. The silly part is I can see the apartments from the hospital. I would probably do better with a bicycle (providing I could still ride one – it’s been a few years!)

The big excitement of course is the Cowboys/Packers game. Funny thing about life – ordinarily Dale would have it on and be yelling at the tv while I frown about all the noise and end up in the bedroom on the laptop. I’m still on the computer but he could care less about the game and is catnapping.

Here is a picture from earlier today, just before I took Sondy to the apartment.
post transplant

They both look good for just having had major surgery don’t they? She will never know just how much this means to all of us.

Day Three Of Transplant

I went back to the apartment and slept last night and evidently I needed it because I didn’t know a thing til 5:30 this morning and then I was awake and ready to go. I did some straightening up and got things ready because Sondra should get to go there today. I checked on her a bit ago and she was sound asleep. They had given her something for gas and she was finally able to rest easy.

I didn’t know that they use air during laparoscopic surgery (not sure how that is spelled) so there is gas in your body after and it tends to migrate to your shoulders and is extremely painful. It slowly got better during the day yesterday and I think it must be much better now because she never moved when I peeked in on her. She looked like she was actually resting instead of napping.
Dale went for a short walk this morning and is napping. They should be bringing him breakfast soon and while he is eating I’ll go check on Sondra again. Her doc should be making rounds around 8:00. It’s going to be a busy day!

Here is a picture of Dale and Sondra the morning of the surgery.
Dale and Sondra

Transplant Update

First – if I forgot to call you – I’m sorry.  I was stressing over the kids driving home and trying to keep up with Dale and Sondra and anyone that knows me knows I can’t multi-task!

Dale is in a room.  They told him he can probably have “real” food at supper – as opposed to liquids only.  Sondra is having some pain today but she has been up walking a little so she is still making progress.  She already had some real food (which we are not telling Dale yet since he is hungry) and I’m hoping that a little food will help them both sleep better tonight. I may go back to the apartment and sleep. I got Sondra moved out of her apartment this morning and switched over to ours so when she is released from the hospital I can just take her home with me until she is ready to fly home.

I want to take a moment to post a few links.  Jeff Boggs has a link on the Teche Matters part of the Kane Radio 1240 Station Website  for the Louisiana Organ Procurement Agency and interviewed Sondra on the radio this morning.  There will be a link to the interview so you can listen to it but it’s not up yet.  You will be able to find it here. I am adding a link to a page at Baylor about organ donation.

I’ll try to post again tonight!

Transplant!

I am not at my writing best lately and certainly not today. It has been a long exhausting day but I am sitting in Sondra’s room – she is doing great and can push the button on her morphine pump whenever she feels the need. Dale is in ICU and I just went to visit – I will get to go again in a few hours. He is doing fine, the kidney pinked up right away and started doing it’s kidney “thing”. Dale is groggy and goofy but not in too much pain. His blood pressure went a little low so they are backing off on sedation and pain meds to get his pressure up. His color was so much better right after surgery than it has been in years. The first thing out of his mouth when I got to see him after surgery was “How is Sondra” and told me to hug her and thank her. The first thing she wanted to know when I saw her was how Dale was and wanted me to tell him that it was worth it.

I did fine until the doctor came out and told us everything was fine and then I had myself a little meltdown but half the folks in the waiting room were a little weepy, so I didn’t feel bad.

I’m just talked with my kids, they are between Commerce and Paris and on their way to our friends house for NCIS night. I was glad to talk to them knowing they had made it through traffic in Dallas since they left right at 4:30. They should probably be doing homework but I think they are hanging in there pretty good just going to school yesterday and tomorrow considering.

Quite a different atmosphere from when we were here last.  All the doctors and the nurses are happy and that is such a change from being here when he was sick.  They all seem to truly be excited about the whole process. I guess like anyone they are happier when they make a positive difference in someone’s life.

We see so much bad in the world.  When we get to see people be kind and selfless it makes us hopeful and sometimes hope is the best thing to have.

Tomorrow they are saying I can get a wheelchair and take Sondra to see Dale.  If he continues to do as well as he has he will be in a regular room tomorrow. Goodnight and thank you to all who have sent emails, prayers, and good wishes.  I have felt it all and it has given me strength.

Monday Night

I took Dale to dialysis (hopefully for the last time) remembering once again why I would NOT live here.  It took a little while to find the place and we were already tired and frazzled.
Sondra is with the rest of Dale’s sisters and his niece is driving in.  I’m waiting for my kids to call and then I will go find them and lead them in.  I will feel a lot better when they get here.  They have no experience driving on freeways.
We have been to so many places today and signed so many pieces of paper – I felt like I was buying a house.

Dale was feeling pretty rough after dialysis so we took him back to the apartment with some food – he had a bad headache and we were meeting his sisters down the block to eat and he didn’t feel up to noise.   The kids made it in fine and so we ate and then went back to the apartment to crash.  We have to be up at 4:30 to get to the hospital on time.

Pre-Surgery Sunday to Monday

Yesterday we got Sondra home.It was a rainy cloudy day and again today the weather was cold and wet. This morning we went to both the church we attend now and the church we had attended for ten years before this, and got prayed over at both places.

A cousin of Dale’s and his wife and family came from out of town to be there for prayer at the first one. We have missed folks from the second and it was especially good to see and hug old friends. After the service they had us come down front and most everyone came and stood with us for prayer. We were talking to a few at the end and I looked up and the daughter of a friend was standing there just looking at me. It took a moment to realize that she couldn’t speak but she had big tears in her eyes. I hugged her and told her it would be okay.

We had just enough time to eat lunch and load up the car for Dallas. We made it back to Dallas after limping along through slow traffic and went to pick up the keys for Twice Blessed House. Instead of having us one two bedroom they had two one bedroom apartments which meant two deposits and two payments. I hope to talk to someone about that tomorrow since no one for the actual apartments was here tonight. No one let us know anything was different and we had called to confirm our reservation so I am not happy about that. We were tired, grouchy, and hungry and went to eat and to Target to pick up some things that will be needed.

I don’t have access here which is a disappointment but I’ll have to live with that. Through all this my nine year old nephew has been wonderful. He dealt with the flight cancellation, road trip to Texas, staying over night with strangers, driving two hours from the airport to our house, sitting through two church services, driving back to Dallas, all more maturely than I did, I think. Tomorrow is tests and dialysis. The rest of the sisters will be driving in as well as my kids so they will all be here for the surgery Tuesday morning.

Posting from Baylor Monday morning!

And So It Begins Part III

Sondra is here! She would have had a 4 hour layover in Houston if she had flown but there was a couple who was driving to Frisco and they adopted her and Michael. They drove them to Frisco, had them spend the night with them and took them to the airport this morning to deal with the ticket refund stuff. We picked her and Michael up and finally made it home. We stopped in Frisco and ate lunch and Dale said something to Michael about taking him back to the airport – Sondra said she would rather have a kidney removed than go back to the airport.
We didn’t know she had decided to drive until this morning when Dale called her. It’s a good thing we didn’t know or we wouldn’t have slept.

Michael was a little disappointed that he didn’t get to fly but we’re getting him pizza tonight and promising that he will be able to fly home soon.

Aaaaarg Or So It Begins Part II..

We got almost to the airport when my cell phone started ringing, beeping, and vibrating all at once. Of course it was in my pocket under my seat belt and I was in the middle of traffic on 75! I finally managed to retrieve it and handed it to Dale who is even more cell phone challenged than me. It was my son – Dale’s sister’s flight was canceled. She was trying to get another flight and would call him back. We finally found a place to pull off and I called her. She was in line trying to get another flight and we arranged for her to call us back when she had an answer. We walked around Office Depot and Circuit City, cell phone in hand waiting for the call.

We did discuss waiting in the parking lot and hoping to spy some little old lady with cigarettes but we did not smoke.  This has to be some kind of award winning mark of self discipline. She now has a flight scheduled to arrive tomorrow afternoon as there were NO more flights out of Lafayette tonight. A half tank of gas and several hours later we are home.
I am decidedly UNhappy with American airlines and of course worried about her getting bumped or something else happening tomorrow.  Thanks to all of you who are praying for us and please keep praying that she gets here!
This is NOT going to be a transplant omen.

And So It Begins

We had a wonderful Thanksgiving dinner yesterday – we have decided Robin has to make dressing next year (we are in quest of the perfect dressing/stuffing).
This evening Dale and I go to the airport to pick up his sister who is donating a kidney to him. She just called to tell him she is at the airport in Lafayette waiting to board.

She and her son have never flown so they are just excited about the trip right now. I took care of some more last minute things today and cleaned most of the day. I have nearly caught up on laundry, picked up the dry cleaning, got a spare tire for my son so he doesn’t end up stuck on the side of the road, and put together my reading/writing bag. I am packed for the most part and I’m sure I will forget something but the kids will be coming to visit so they can bring stuff.

I have my latte to keep me awake on the trip to the airport. I detest this drive and I especially hate going to the airport. I hate parking, I hate trying to get from the car to where you can pick up your person, and I hate trying to find the car after all that. We have parked and ridden the shuttle before but with this being the end of the Thanksgiving holiday weekend we will be lucky to find a place to park period.

We are all grouchy and snappy with each other and I can tell we are stressed. We are ready to begin.

My Daughter And I Do Not Have Communication Problems!

We are sitting 12 feet away from each other – she is on the pc and I am on the mac.  My husband is sitting between us in the recliner watching tv.

Chat transcript from Skype:

She: rawrrrr i is BORED mom.
can we watch the other movie??

Me: ask dad – I have to go mash taters and get out the turkey

She:  kk, need any help?

Me:  oops how are you going to ask him he doesn’t have a computer?

Husband: Just shaking his head and rolling his eyes as we explain

Skype!

skypeicon.jpg The synapses connected for a minute this evening and I realized that if I get a webcam for our pc then we can talk to the kids via Skype. My daughter downloaded it and called me. Even though she couldn’t speak since there is currently no microphone hooked up, she was able to see me on her screen. She made the view full screen and I could see myself across the room on the pc screen. It was a little weird but it worked wonderfully. She is so excited that she will be able to video chat with us. I know it will help if the kids can actually “lay eyes” on their dad and it will help us if we can actually “lay eyes” on them! Now we will have to try even harder to find places that have internet access over there!

Addendum: went to wally world this morning and got a webcam.  It all works well from one end of our house to the other so we will try when we are in Dallas.  I am pretty confident that Skype will work – I’m just concerned about access.  More on this later.

A Little Santa Break

My kids always want to know what I want for Christmas – I’m totally telling them this:

bloggingmoxie.jpg

Quote from the back cover:

Champagne punch anyone?
Watch for fun, stress-reducing ideas sprinkled throughout the book, such as the best lotions for busily blogging hands, refreshing recipes, and great ideas for cocktails

That’s what I’m talking about!

Thankful Beyond Words

I can’t even write about it without getting weepy and maybe I can blog about it later but today the folks I work with did a really nice thing for us and it will help us as we head for transplant land this weekend.  People do not always realize how they become the face and hands of Jesus,  I don’t handle receiving very well.  I want to be the one who does the giving and being on the other end is humbling and confusing for me.

I am ready for this to happen and for everyone to be fine and me be back at work hopefully being a better person for it.

Another Journaling Application

I will be the first to admit that while I am great at trying new things, I am not great at following through. I have the best intentions but this and that happen and next thing I know, I have forgotten that shiny new goal.

This school year I was determined to be more organized and I think I have improved some but there is definitely room for more. I have tried several applications this year as I tried to get in the spirit of GTD and most of them just seem more complicated than I need for what I do.

I am trying a new one starting today. It is free and simple and I’m loving that. It is called Tagebuch. It is from MyOwnApp and is a very plain diary program. You add a new entry and it adds the date and time so you can do multiple entries in a day. You can tag your entries and search them. There are a few formatting choices and you can export your notes as a PDF but for the most part it just gets out of the way and lets you write notes. So far the only feature I would like to see is a way to see a list of tags I create but I can live without it.

I will be giving it a workout this next month because I plan to use it at the hospital. I have learned to take notes on everything that happens and while I like online apps, I know I won’t always have access. This will give me a way to take notes while it keeps track of the date and time for me.

As you can see the interface is very clean and basic – write a new entry, delete an entry, tag an entry, and search for an entry.

tagebuch.jpg

I think I already love this.

Resources For Storytelling – Digital or Non

Cross posted at PHS Computer Project Lab
I started out searching for how writing is taught so that in the future I might be a better commenter. I found some wonderful resources and I’m going to share them here before they disappear into bookmark oblivion.

The first is from the Northwest Regional Educational Laboratory and is called 6+ 1 Trait Writing.

The 6+1 Trait Writing framework is a powerful way to learn and use a common language to refer to characteristics of writing as well as create a common vision of what ‘good’ writing looks like. Teachers and students can use the 6+1 Trait model to pinpoint areas of strength and weakness as they continue to focus on improved writing.

There are lesson plans, assessment, prompts and more. There is more on this at The Writing Fix and at eMints which has a huge list of links that even include classroom posters you can print out.

The next treasure is The Scribe Initiative which is a wiki of the San Antonio School system dedicated to digital storytelling. There is an incredible wealth of resources here including links to open source software for editing audio, tutorials for using MovieMaker and PhotoStory, sources for images and sounds and much more. If you want to take your student’s writing digital this is a great place to start.

writertee.jpg

“How do I know what I think until I see what I say?
E. M. Forster

Time Is Relative

My dad liked to fix things. He tinkered. He also went through phases. He worked in a paint factory full time but for years he also clock2.jpgrepaired lawnmowers and boat motors. The nature of growing up in a lake town means that there is a steady trail of folks trying to upgrade boats and motors so it kept him busy and his reputation grew. He also did something that we called “scrounging”. He could find junk, fix it, and sell it for two and three times what he paid for it. It kept us fishing and water skiing as I grew up. It also provided me with a bicycle, a record player (for those of you who are not from my time – think of an iPod for dinosaurs), a sewing machine which I used for years, and many other things that we probably could not have afforded if not for his ability to create value from none.

One of his phases was clocks. For awhile there were multiple chiming clocks in our house and the hour and the half hour was a bizarre but not unpleasant combination of chimes and bells. You would think it would interrupt your sleep but it was one of those things that once you got used to it it was comforting.

My mother was always amazed that he could “tinker” with the tiny clock works because his hands were as big as baseball mitts! I know this was not just a family exaggeration because I brought a date home one time and as we pulled out of the driveway he said that was the biggest hand he had ever shaken. We got home from our date on time.

Today Dale finally hung a clock that was repaired years ago by my dad. When he passed on I got to pick from several and chose this one. Today Dale hung it in the living room and got it working again. The clock is a 1925 Junghans chiming wall clock. It’s mahogany and about 28 inches tall. The first chime took me back to living at home and hearing all the clocks and seeing my dad at the kitchen table at night with clock pieces spread out around him.

It still needs some work but now that Dale is interested it will end up spread out on my kitchen table and it will be keeping time again.